To direct the Secretary of Health and Human Services to carry out a program under which the Secretary will collect data with respect to sickle cell disease in the United States, and for other purposes

Progress

Timeline

• Mar 24Referred to the House Committee on Energy and Commerce.

Summary

**Bill Summary: HR 8067 - Sickle Cell Disease Data Collection** This bill would require the Department of Health and Human Services to create a program that systematically collects data about sickle cell disease across the United States. **What it does:** Establishes a federal data collection program to track information about sickle cell disease, including how many people have it, where they live, health outcomes, and treatment patterns. **Who it affects:** - People living with sickle cell disease (primarily affects African Americans) - Healthcare providers treating sickle cell patients - Medical researchers studying the disease - Public health officials planning services **What would change:** Currently, there's no comprehensive national system tracking sickle cell disease. This program would create standardized data collection, helping identify gaps in care, track disease trends, and inform policy decisions about research funding and healthcare resources. **Current status:** The bill is in committee and has not yet been voted on by Congress.

How This Affects You